Friday, April 26, 2013

Vivien needs your help!!

I need to share something important.
Many of you know my niece, Vivien, the subject of many of my layouts, has Cystic Fibrosis. 
Despite her hardest puffing, she was unable to 
even blow out her birthday candle on her own.

Cystic fibrosis is an inherited disease that affects the lungs and digestive system and causes the body to produce unusually thick, sticky mucus that:
  • clogs the lungs and leads to life-threatening lung infections; and
  • obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

A life expectancy of 30-40 years is not good enough. 

At, 2 years old, Vivien loves the movie,"The Sound of Music". She can sing "Do Re Mi" with the best of them. As she drapes a blanket around her and pretends she is a bride marching down the aisle, I wonder if that is something she will live to experience. Will she get to graduate? Be a bride? Have children of her own? 

She needs more time. 

 The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. They fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.

If you can spare a dollar or two to help Vivien and children like her have more time, more chances at their dreams and more tomorrows, please click here to learn a little about Vivi's story and how you can help. 

Thank you !


Sandi Cl~ said...

Keeping her .. and others in my prayers!

Bonnie aka Cinnabon said...

Ah! I hear your heart! My g-niece Cassidy, whom is a frequent subject on my layouts has CF as well! She was diagnosed this past October I think. Poor girls! They are in the middle of raising funds for a CF walk coming up.

Fern said...

Having gone thru this with my niece... My heart goes out to her and her family!! Will continue to help in trying to find a cure for this awful disease!!! Hugs!!